Co-Creating Empathic Solutions to a Wicked Design Problem
The Recruitment and Retention Challenge
- Design Thinking
- Quantitative and Qualitative Research
Deliverables & Tactics
- Ethnographic Research Study
- Custom Patient Engagement Protocols
- Real World Qualitative Evidence
LIFT was hired by CARRA as part of a PCORI-funded effort to explore and prototype solutions for clinical trial recruitment challenges using ethnography, design thinking, and traditional qualitative and quantitative methods.
- To understand the parent’s reality upon diagnosis of a child with JIA at first joint.
- To identify key factors related to clinical trial participation and retention.
- To use an iterative design strategy to increase clinical trial participation and retention.
TARGETED AREAS OF FOCUS
- Juvenile Idiopathic Arthritis
- Clinical trial recruitment
- Clinical trial retention
Understand the emotional state and lived experience of parents and patients at the time of diagnosis
Assess the acceptability and effectiveness of clinical trial recruitment and retention materials
Iteratively design appropriate recruitment and retention materials over the course of the clinical trial
Navigating regulatory mandates on communication.
Identify key factors to recruitment for a population that may not be ready to participate in research.
- Co-design with diverse stakeholders
- Ethnographic immersions supported by film documentation
- Traditional methods including telephone interviews and electronic surveys
- Thematic analysis of findings
This study is ongoing. LIFT has completed a design thinking workshop and designed the initial tools for recruitment and evaluation. Protocol and IRB are finalized and this study will run through 2020.